The ‘Lighthouse Projects’ are in the clinical development of the chronic diseases Epilepsy, Haemophilia also Bipolar Disorder. The epilepsy Lighthouse project is a partnership among a number of organisations – RSCI, HSE, eHealth Ireland, Epilepsy Ireland, Beaumont Hospital and Ergo. There are many positive result and benefits for patients as well as healthcare professionals associated with utilizing information technology within health.
Providing personalized Services and Care in Epilepsy (PISCES) is a Lighthouse Project with a number of partners including HSE, eHealth Ireland, Epilepsy Ireland, RCSI and Beaumont. In the past there was no way for patients, academics or clinicians around Ireland to record their medical specifics electronically which created numerous problems.
The PISCES Project is about using technologies to promote a model of precision, proactive also personalized healthcare for the more than 40,000 people with epilepsy across Ireland. The solution developed is an Electronic Patient Record (EPR) and Patient Portal App focused completely on the needs of epilepsy patients. The calm portal is a mobile-first, cloud-based solution. No matter where care is delivered, information can be collected, added to the care record, and gained by the care team regardless of geographic location or care setting. The project also involves the development of a BI solution that enables clinicians to securely use aggregated patient data to analyze and gather insights for the wider patient community to inform future care and population health.
“I think it definitely is a step of independence for a lot of people that don’t have that at all. They feel like they are kind of controlling in some way an illness that you can’t control at all.”
Clinicians now have a streamlined view of patient information through the Electronic Patient Record (EPR) – a single source of truth where all patient medical information can be recorded also accessed from anywhere nationwide. As part of the EPR, genetic data can be easily interpreted, and documenting decisions also agreed actions have been simplified.